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Jill
Mar 8, 20181 min read
LEJo'g......
So dreams are actually becoming a reality and Paul's idea of doing Lands End to John O'Groats is starting to take shape. Tom Q's idea of...
Jill
Mar 2, 20182 min read
Radio-rotten-therapy..
Paul had a radiotherapy session 3 days in a row this week. I'm told each fraction was high-dosage, and is normally given to...
Jill
Feb 25, 20182 min read
Paul's 44th birthday
This should be a post where I write of cake and balloons and everyone toasting.. But it's not. Paul is still battling with surgery...
Jill
Feb 19, 20181 min read
And I Would Walk 10,000 miles..!
Paul is now doing 10,000 steps a day. Pretty flipping impressive if you ask me. There have also been downs though. His mood has...
Jill
Feb 14, 20181 min read
Happy Valentines!
So we decided that our anniversary, birthdays and Valentines were being merely put on hold this year. Paul's mate Walty* ("geeezarr!")...
Jill
Feb 13, 20181 min read
2 weeks post-surgery
Dear Diary, For his birthday Paul asked for a garmin watch fitness tracker as he's on a roll. He should be just well enough to attempt...
Jill
Feb 7, 20182 min read
Uphill Struggle..but home!
Paul managed a floor of stairs consisting of 4 sets of 10 steps. He's hurting and feeling faint, but he did it!! On Wed 7th, 9 days after...
Jill
Feb 4, 20181 min read
Daddy is better than Batman
Hooray. Cam finally got to visit daddy today. This pic sums up the visit. Most fun had playing on the bed - which goes up and down! Cam...
Jill
Feb 3, 20182 min read
Saturday Setbacks - Day 5 post-surgery
So Paul's catheter, drains and epidural have been removed.. even the fabulous "magic button" pain relief blaster. Uh-ohh. It's "cold...
Jill
Feb 2, 20181 min read
Friday - 3 days post surgery
Paul is definitely still in pain, but making progress. There was a dodgy moment when the Fentabryl (press-on "magic button" painkiller)...
Jill
Feb 1, 20181 min read
Wednesday - Day 2 post-surgery
My lovely friend Michelle took the day off and drove me to the hospital. Poor woman..I had quite a download on her...but felt so much...
Jill
Jan 31, 20182 min read
Tuesday - Day 1 post-surgery. Drains, DVT stocking and teddies!
The drains .. Paul doing really well despite being drugged up to eyeballs and in constant pain. All his vitals are good and he is...
Jill
Jan 29, 20184 min read
Operation Survive..
Today is the day. Paul is having his lung popped, tumours scraped out and red hot chemo will be inserted over where the tumours were.. in...
Jill
Jan 25, 20184 min read
Friends
We have been overwhelmed by the amount of support we've had. Our friends are absolutely INCREDIBLE. One new pal (called Nic who I think...
Jill
Jan 25, 20181 min read
Oh Maaaaan!
Had the most amazing break in Oman. Stayed at the Shangri-la and it was wonderful to feel normal..and laugh so much as a family. Paul had...
Jill
Jan 24, 20182 min read
Listening to Bupa Hold Music..
Sometimes I think that life couldn't get weirder.. I know this Bupa music off by heart and I know my acc no off by heart and exactly what...
Jill
Jan 19, 20181 min read
Sod off Dr Death!
We met the most depressing surgeon ever this am after waiting 2.5 hours. We named him Doctor Death because he kept on going on about the...
Jill
Jan 15, 20181 min read
Meso-sun!!
Hurrah! We've booked a last minute holiday to Oman leaving tomorrow. Minor disaster in that I forgot to get Cam a new passport and it's...
Jill
Dec 15, 20171 min read
"This is NOT a Life Sentence"
The opening sentence from Loic, one of the surgeons we're considering. He knows more about mesothelioma than anyone we've ever met...
Jill
Dec 15, 20171 min read
Awesome Advice
We are super-fortunate to meet Prof Loic Lang-Lazdunski. He is brilliant. Kind, funny, positive..and well-read in everything concerning...
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